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Artsy Escapes from Pain

Artsy Escapes from Pain

Several adult coloring books are currently ranked in the top sellers on Amazon. Those of us engaged in artistic work are silently smiling that folks are “getting it”. Getting that working creatively is rewarding. Getting that the arts allow you to process life. Getting that slowing down and focusing is a way of de-stressing.

I have always connected with the arts. At a young age I realized that it functioned as a pain management tool. It allowed me to purposefully navigate painful years. It even laid the roadmap to me eventually becoming an artist.

Landscape at dusk

Here is an excerpt from my published memoir, Silent Courage. This chapter details some of the ways I employed creative activities to help build self esteem and manage pain. My pain was from hip dysplasia and  not relieved until I reached the age of 40.

 

Chapter 6: Artsy Escapes

I never complained to my neighborhood friends about my legs in the same way that our fathers never talked about trading in their high school graduation caps for military-issued uniforms and guns to fight in World War II. There were certain things no one talked about when I was growing up. We called these the “unmentionables.”

As a group of almost one hundred kids in our neighborhood, we always played together. These were the baby boom years. (Our family of five kids would eventually include seven children with the additions of my sister, Rose, and brother, Joe, a few years later.) Playmates were plentiful. I did, however, dread the days when as a group we ran back and forth from one end of the block to the other, in search of a seemingly precious bat or ball. Some days when my legs would begin to hurt, I decided to forego whatever fun might be in store for the gang in order to rest my legs. This became my primary focus. I would often make up an excuse about my mom needing help with one of the babies. I just wanted an acceptable reason to sit down and rest. I am not sure anyone ever saw through my fabricated lies. Often, I wished I could trade my body for a new one so I could do everything my friends did.

Aside from school, my days were spent playing amid gangs of neighborhood kids. My life changed the day I discovered there were other options to fill the day. One playmate was enough. This made it easy to maintain control, voice your opinion, and choose whether to sit or stand. When I sat rather than stood, I avoided discomfort. I had as much fun sitting down while dressing up dolls and playing board games as I did running around in a game of tag or kick ball. I gradually learned that I could replace pain with pleasure by actively deciding how I spent my time. I could be in control—and that was revolutionary for me.

From a very young age, I loved using crayons and colored pencils to draw and color. I can still smell the crisp, slightly textured, manila newsprint in coloring books and recall the satisfaction of coloring inside a black outlined shape. Building up waxy, shiny, flawless layers of color delighted me. I brought something to life on a page. This creativity empowered me and gave me self-worth, as I proudly showed off every completed page to Mom and Dad for their praise.

I nourished this desire to make beautiful things with my hands while using the simplest of materials. Whether it was sculpting, helping Mom cook, or drawing, I did it all. I built detailed sandcastles with just sand and water. I helped Mom bake and marveled at filling up measuring spoons with flour and carefully dumping out perfectly domed shapes. The repetition of performing these activities was soothing in contrast to my pain. I may have begun by coloring inside the lines, but I would revel in going outside of them, exploring the possibilities of any and all available media.

My mother, like her mother, was very talented when it came to sewing and knitting. I watched her press the foot pedal on her gold-edged, black, electric sewing machine for what seemed like hours. She fed huge lengths of material under its needle and eventually produced a finished product. She creatively turned scraps of material into little outfits for our dolls. Long before I was old enough to reach the foot pedal, she would place it on the kitchen table, allowing me to press it with my hand and sew straight rows on doll blankets. I also loved hanging over the stuffed upholstered arm of the living room chair while she knitted. The rhythm of her clicking needles captivated me. I am thankful she had patience to deal with my questions.

“Mom, how do you do that?”

“Sit down and I’ll show you. Let me see your hands. Hold this needle in your right hand and this one in your left. Now start with this piece of yarn,” she said beginning her impromptu art lessons.

I recall walking into the bedroom that my brothers shared and seeing the blue curtains with white edges she had just designed, sewn, and mounted on rods. She followed no pattern—the entire project conceived inside her mind’s eye. I envied her talent. I fed off her desire to beautify the world. Inhaling the confidence with which she attacked projects, I willingly gave new things a try, believing that I was also competent.

Every once in a while Dad got creative, as well.

“What’s in the bag, Dad?” I asked him as he walked in one night after work.

“I stopped at the art store today and picked up some fresh tubes of cobalt blue and burnt sienna. The guy who worked there suggested I buy this new brush, too. They’re selling like hotcakes! Think I’ll go down after dinner and work awhile. Want to join me, MT?” He referred to me by my initials for Mary Theresa, which was his nickname of choice.

“Sure, let me go get my shoes.” I bypassed nagging mental reminders that I had a spelling test to study for—that could wait.

In the back of our unfinished, concrete basement, Dad set up a modest studio for his painting supplies on an old office desk. He reproduced his favorite paintings from the small postcard versions he had purchased at the Art Institute of Chicago. I would sit on a wooden stool next to his chair and watch him squeeze out snakes of oil paint onto a parchment palette. He drenched them with smelly oil and mixed it all together with a bent knife. A secret he had not shared with me was that he had a form of color blindness. Sometimes his colors were wide of the mark. I would have to shake my head and tell him, “No, that’s not it.” He relied on me to suggest what colors to mix to achieve a match. When we got a color correct, he said, “Yeah, that’s the ticket!” That was my favorite reply of his, which made me feel like an expert artist. I know these precious times spent with each of my parents inspired my interest in art later in life. I often wished we talked about my leg pain with the same ease with which we mixed paint and stitched material.

As I grew, my parents never asked me about my legs. In fact, they avoided answering any questions I raised. My father, more than my mother, displayed a strong denial about anything painful. When I complained about my legs feeling tired and heavy, my mother frequently replied, “You should tell your father.” He would respond late in the evening returning from work with, “No, that’s not possible, MT. Why would your legs hurt?”

How would I know why my legs hurt? At that young age, when all I knew was to trust my parents, having my hips and my feelings hurt at the same time felt overwhelming. When my questions got bounced back at me from my parents, I began to feel that I did something, unbeknownst to them, to cause my pain. Perhaps that was their way of giving me a normal childhood. Or one that seemed like it. The Irish have a knack for painting over the harshness of reality to make it more palatable.

I am sure my parents received the assurance that everything that could be done for my hips had been done. I am not sure whether they ever heard I might encounter pain, which would gradually worsen as my bones matured. Or maybe they were warned. That might explain their unwillingness to hear me complain. It would validate a reality they hoped to avoid.

About this time I began reading children’s mystery books to escape my discomfort. Much like my favorite characters in these novels, I began mentally recording situations that seemed unusual. The things that I noticed and recorded were: having to skip to keep up with the walking pace of friends; always being the last one to finish a race; wanting to sit when others comfortably stood; choosing to walk around rather than climb a fence; struggling to jump rope double-dutch style; overhearing muffled conversations mentioning my name that ended when I approached. I sensed something unique about my pain experiences, but how could I be sure? I only possessed those clues, which added up as I grew taller. No one wanted to accept what I so desperately wanted to share. Is there something wrong with me wanting to share my feelings?

My parents continuously failed to acknowledge my complaints and their silence began to surround me. Their avoidance, dismissive nature, and lack of communication crystallized my secret. As my legs were getting longer, my pain increased proportionally in size alongside my shame and guilt. I knew what I felt, I just did not know why. No one ever told me about my hip dysplasia diagnosis or that I wore a corrective cast as an infant. I just knew the aches and fatigue that came from walking or standing for long periods of time. In addition to the physical pain, the discomfort that no one understood my complaints gave my pain a harsher edge.

I deeply regretted my hip pain being an unspeakable topic. My pain was an “unmentionable.” The lack of understanding, conversation, and acknowledgment only heightened my anger and frustration, allowing my secret to get darker and deeper. A chasm grew between what I knew to be true, that my legs always hurt, and what my parents would not validate, that there was a problem. I knew of only one thing that might provide some relief. But I needed my parents to agree on it first.

 

A Slice of Chronic Pain

Screen Shot 2015-01-27 at 10.00.22 PM

A slice of the chronic pain world is about all you get from the movie “Cake”. The movie’s focus concentrates primarily on what a life with Chronic Pain is like when you you choose to cut yourself off from available resources and, as one character points out, use anger as a pain management tool.

I had high hopes that the movie would provide a broader understanding of the challenges and wealth of resources that are available for those attempting to manage their pain.

The take away for me was “Don’t try this alone” when it comes to managing pain. And if the movie speaks  to those currently walking this path alone, then it will have some redeeming value.

 

Digesting “Cake” the movie

The movie “Cake” starring Jennifer Aniston allows us to journey into the life of a chronic pain patient. I anticipated the movie providing the transformational energy of a watershed moment. I anticipated hundreds of people commenting on relevant articles about the movie. I anticipated people and conversations would stir with insight.

The Pain community is doing a great job of getting the word out through media sources. But I am left wondering “Why is “Cake” not stirring more conversation?”

Statistics cite over 100 million Americans have been diagnosed with chronic pain. We all know someone or have been that someone who is included in these numbers. I spent over 40 years with this unwelcome bedfellow.

Maybe I should not be so surprised. Pain has its own unique set of dynamics.

Pain patients are often their own worst enemy. Many of us go years denying what we are experiencing, fearing it may require lengthy, expensive and inconvenient measures to correct. Or we spend years frustratingly going from doctor to doctor, procedure to procedure, medication to medication searching for relief or proper diagnosis. In both cases, we struggle to find the words to truly explain how we feel.

“Cake” exposes some raw truths that perhaps we would rather not know. It is disturbing to think that a friend or loved one might be undergoing the same tortured life as Claire, the main character.

It is unpleasant to be on a plane with a crying baby. It makes us uncomfortable. We need the baby to be soothed. It disturbs our comfort when we are aware of someone who is unconsolable.

Does the movie “Cake” touch on something deep within us that is too difficult to consider? We live in a world where we have the tools to fix a lot of medical problems. Does the fact that chronic pain is no easy fix seem incomprehensible? Is it to costly to imagine that there are many Claire’s in this world trying to make it through each day?

The movie provides an opportunity to engage in conversation. I pray it increases awareness and moves us closer to identifying causes, cures and resources. I pray it broadens understanding of the multi-faceted complexity of pain. I pray it minimizes the gap between patients and those who love and care for them.

 

Chronic Pain Conversation

MaryByrneEigel-Event

Recently, our local YMCA branch asked me to speak at a community luncheon about Chronic Pain. They know I have a book coming out on the subject and thought chronic pain management would be of interest to their clients.

I agreed. A date was set. Then I began to worry.

Who really wants to hear about chronic pain? Folks who are in chronic pain often want to deny that they are there. Doctors get frustrated when their patients don’t follow their medical reasoning and advice about it.

The next question I had for myself was – who will attend? The Y is doing the advertising. Members will see the posters. But these people already come for wellness/exercise programs. Won’t this be like preaching to the choir?

Friday came, and I arrived early. The staff was setting up tables and food. People began to stream in from exercise classes and the parking lot. The audience ranged in age from 40ish to 80ish, filling almost 40 chairs.

An older lady who sat in the front commented, “You can just look in someone’s eyes and know they are in pain.” I told her that was only half true. Those of us who know what the experience is like can read the subtle signs. But if someone has never been in long-term pain how can they be expected to understand?

It was special to be together, engaged in a group and validating that pain is real.  That pain is often an uninvited guest requiring special accommodations. That only those who have shared a painful experience can really understand. And that using every available resource to be the best version of yourself requires access to information and opportunities.

I shared my experiences, current research findings and both Internet and local resources. Our sharing was beneficial. Being able to intelligently converse, not just complain about pain, gave people permission to find their voice and speak their truth. I may have been preaching to the choir but it allowed me to see that even they enjoyed adding to their repertoire.

Chronic Pain Conversations

EIGEL_oneWAYBut Why?

I remember hearing this question from each of my daughters when they were young, resisting what they were asked to do. The question is both innocent and wise.

I am nearing the completion of writing a book that chronicles my lifelong journey and triumph over chronic pain. There were many mornings I could have hung it all up because I did not have a definitive answer as to “why” I was taking all this time to write. Is it going to be of value? Will it lead to another career path? All I had was an intuitive hunch that folks did not understand some things I shared regarding the mind, body and spirit aspects of pain and maybe that was reason enough to want to put pen to paper.

It was not until now, when I am in a position to get feedback from friends and professionals I respect, that I realize the journey was worth taking. That it was of value to allow myself to be vulnerable and put my story out there.

I am thankful that I was innocent enough to keep going and not demand an answer.

And now I look forward to the publication of my book in the near future with the hope it can expand the conversation about the experience of pain and successfully dealing managing it.

Turn Resistance to Chronic Pain Issues into Assistance

I have found myself in places I would rather not be. Being in pain is one of them. I have spent a lot of time and energy “trying not to be there.” I have denied my pain by refusing to recognize the importance of daily exercise, and suffered for it. I have challenged my pain by doing things I knew I should not do, and suffered for it. I have refused to accommodate my pain by doing things like wearing sensible shoes, and suffered for it.

A speaker I heard last week, Jaison, spoke about how we can change “resistance to assistance”  by altering our beliefs. Accepting that “You are in your rightful place” allows the energy you might spend denying a situation to be spent assisting with the situation.

Several years ago I was told that my blood sugar levels were high and I needed to see someone about controlling it. Expecting that this meant nothing more getting a lecture and another brochure, I willingly made the appointment. When I arrived the specialist took out a glucose meter and said “I want you to start taking your blood sugar levels every day.” I could have bolted at that moment. It took a lot of energy  not to flee.

I am not sure how much of what she said I actually heard.  Simultaneously echoing inside my head was,  “I don’t belong here, she is mistaken. My blood sugars aren’t that bad. I am a good person, I should not be hearing this.”

This was several years ago. I have accepted this diagnosis, but also realize that I still have resistance. I still need assistance with my resistance. When I realize that, like Lady Macbeth in Shakespeare’s Hamlet, “The lady doth protest too much,” it is a red flag to me that my resistance is strong and I am going to need a lot of assistance.  It is my choice whether to spend energy resisting or assisting.

Do you have a chronic pain related issue that you struggle to accept? What types of assistance have you had to use?

Working with Chronic Pain Obstacles

  The obstacle is the path.    

         Zen Proverb

I just saw this great quote on Beth Havey’s blog. She is a boomer licensed nurse/writer blogging about keeping our lives on track in the midst of all  that life presents to us each day. When I read or hear about  all the demands that are placed on us, many that we lovingly absorb, I am reminded how much tougher this makes a day for someone navigating around chronic pain. I encourage you to check out her site. In addition to pain management, life management skills, on which she offers some great ideas, are an essential part of the equation.

Reflecting on the quote, I was hearing something I did not want to hear. If the obstacle is the path, then meeting it head on is what we should be doing. This takes courage. It is always much easier to skirt what is in our way rather than confront it. Running and hiding, in a comfortable place where we cannot even see the obstacle, is another viable option. The quote suggests the contrary, we should identify our challenge and work with it to discover our life path.

It takes a lot of centeredness to approach life with this perspective. If we choose to acknowledge what lies in our path it is a means of staying centered. It is a giant post-it note reminding us that we cannot forget ourselves and the nourishment we need, before we decide how much we have to give to others.

What strategies or “post-it notes” reminders do you use to ensure you don’t give all your energy away to others, ignoring what you need for yourself?

First Aid for Chronic Pain

This past weekend I was hit with a virus. It took me back to my pain days, when I was spending more time in bed than on my feet. I am guessing that most folks have had at least one encounter with a major virus, and can remember the anger, frustration and lack of energy that are part of this experience. Imagine how it would be if you were constantly trapped in this situation.

If you come across someone you love who battles chronic pain and you see them engaging in what might seem like a leisurely activity, like laying down and reading, don’t rush to judgement. They may appear to be lounging, but in reality, they are engaging in a healthy dose of “First Aid.” They are seeking a diversion from their situation. They are choosing to take control of their life and engage in something  manageable and meaningful. They are attempting to avoid suffering. This is good medicine. Encourage them and their efforts to stay engaged.

To see someone in pain, not engaging in a healthy activity, that is when you should worry. These folks are feeling a loss of control and trapped in their pain. Depression is sure to follow.

First Aid can consist of simple measures, but can also be life saving. Do you have certain “First Aid” measures that you employ to ward of suffering? What gives you a sense of being able to escape the ugly pit of chronic pain? Have you found yourself misjudged as being lazy when in fact you are doing the best that you can at a given point in time?

Playing with Chronic Pain

I just got back from an amazing vacation in Mexico that centered around swimming with dolphins. They are truly amazing creatures. I felt drawn to want to be around their energy. Evolving over ten million years ago, they are considered one of the most intelligent animals. Play is an important part of their culture. This tells me they understand something significant.

“The master in the art of living makes little distinction between his work and his play, his labor and his leisure, his mind and his body, his education and his recreation, his love and his religion. He hardly knows which is which…. He simply pursues his vision of excellence in whatever he does, leaving others to decide whether he is working or playing. To him, he is always doing both…” -Zen Buddhist teaching

With Chronic Pain, it is too easy to become serious about everything. Taking a lesson from the dolphins, that play is an essential activity, I am anxious to incorporate their wisdom. I can already guess that it will make some unbearable parts of my day more bearable. Hey, if we can redo the daily food pyramid, maybe it is time we rethink our priorities regarding daily activity needs.

Have you understood the wisdom of the dolphins and put play in each day? What works for you?

Transforming Pain

As a child, I remember my father doing a trick where he would hold a coin in his hand, make it disappear and then magically reappear behind one of my ears.I was amazed at how this happened.

This morning watching the Royal Wedding, it was equally magical for me thinking about how Kate was transformed from a commoner to a Princess with her wedding vows. She is no different a person than who she was yesterday, but now her life will have the capacity to expand in unimaginable ways.

Sometimes I think that as chronic pain sufferers, our pain has robbed us of our original identity. It has taken away from our self image and perceived value. What we need to do is give value back to ourselves. Believe that we are worthy of the best that life has to offer and never stop believing that tomorrow can be transformational, just like today was for Princess Kate.

Keep believing that transformations, large or small, are possible. Here are some magic coins for safekeeping.